It is very sobering to see your journey from the outside. As parents we are so caught up in making sure that our children's needs are provided for and worrying and stressing that it is impossible to slow down and step back to take it all in. My dear friend Lisa Zanchi was with us on the day that Ky was born and was able to chronicle the heart breaking hours that followed. We felt it only appropriate that she finish this journey with us. We know (or HOPE) that most of our surgical journey with Ky is done... and what an amazing and appropriate finish it was.
This our journey beginning at 4 am on Tuesday March 18 , 2008 and concluding at 4 pm on the same day. It is a journey filled with much anticipation, fear, hope and tears. I hope that as you watch this you can FEEL what it is like to experience a day in our shoes. This is a day that I pray no one else ever has to go through but know all to well that I was not the first, nor will I be the last parent to walk in these shoes. I will leave this post with this show up forever. As soon as I get a bit of sleep and come down off my emotional high I will post and tell you all about our stay and our amazing medical team and hospital!!
When listening to this song it never had really touched me until this week... and when I realized WHAT the words were saying I understand that there cannot be a more appropriate song...
This town is colder now, I think it's sick of us
It's time to make our move, I'm shakin off the rust
I've got my heart set on anywhere but here
I'm staring down myself, counting up the years
Steady hands, just take the wheel...
And every glance is killing me
Time to make one last appeal... for the life I lead
Stop and stare
I think I'm moving but I go nowhere
Yeah I know that everyone gets scared
But I've become what I can't be, oh
Stop and stare
You start to wonder why you're 'here' not there
And you'd give anything to get what's fair
But fair ain't what you really need
Oh, can u see what I see
They're tryin to come back, all my senses push
Un-tie the weight bags, I never thought I could...
Steady feet, don't fail me now
Gonna run till you can't walk
But something pulls my focus out
And I'm standing down...
Stop and stare
I think I'm moving but I go nowhere
Yeah I know that everyone gets scared
But I've become what I can't be, oh
Stop and stare
You start to wonder why you're here not there
And you'd give anything to get what's fair
But fair ain't what you really need
Oh, you don't need
What u need, what u need...
Stop and stare
I think I'm moving but I go nowhere
Yeah I know that everyone gets scared
But I've become what I can't be
Oh, do u see what I see...
10 comments:
Ok so maybe you should have added a warning to you video.... I am sitting in the waiting room waiting for the Myleogram to be finished... Tears running down my face. Thanks for sharing such an intimate moment.. It is a mirror of so our lives so many times...
I hope all is well, and Ky is bouncing back...
Give her a big hug from us...
Tommi & Amanda
Oh gosh Amber....I am crying like
a baby here!
Thanks so much for sharing this.
What a journey your family has been on.
Those pictures are SO touching.
I pray that this will end soon and KY will
be 100% and the hospitals will be
a thing of the past for you all.
The pic of the blanket over her head...too
cute....the ones of Troy holding her...ughh
broke my heart. BEAUTIFUL!
XOXOXO to you all! Daphne
Love all the pictures . I can so relate to all of them . I am so glad that Ky had gotten such good care and that her surgery went so well :>)
Sending hugs to you all .
www.caringbridge.org/visit/margaretreed1
WOW.
www.caringbridge.org/visit/lh
I've said it before and will say it again. You are amazing people. So strong and loving. I think about you guys often. Thanks for sharing this.
Now that all of Ky's and Emma's surgeries are done....we gotta start breaking them of the binky habit LOL I am tired to pictures with their binks in them-both of them have such pretty smiles that we never see.
Love the music-perfect fit like always-the pics are amazing!
Laura
beautiful, Amber. I can definitely identify with the struggles and ups and downs with a special needs child. Know that I've prayed for you today and will pray for Kyleigh when the Lord brings her to mind.
oh Amber. This was amazing. You guys are in our prayers everyday.
This slideshow was so moving, made me hug my dd tighter. I'm looking forward to hearing a good report that all is 100%
Your KY is just an amazing little girl! I will continue to keep your family in my prayers!
Gina aka gab423
I'm finally just getting around to seeing this. I am always amazed at your strength and love and tenderness. These images who it all so much. Troy looks so endearing with Ky.
Such a pleasure meeting you all in Orlando. I hope to see you all again before too long.
Thank you so much for sharing and I hope Ky is doing great!
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