Its WORKING!!!!!!!!!!!!!!!!!

OMG... the Ditropan is working! Ky had two Dry diapers!!!!!!! I am absolutely floored! Dr. Alam's nurse emailed yesterday to say that Ky's 24 hour urine output was high for her age and weight and that they would want to closely monitor that for a while. I asked her what that meant in terms of Kyleigh's human dynamic and she really skirted around the issue saying that it was just a snapshot in time and that they would probably want to continue getting these snapshots throughout the next year or so.

So... I need to go do some research on what this could mean since she didn't offer.

And here's the thing. People seem to ask me- why does it matter. BECAUSE it matters to me. Is it so wrong to want to KNOW what is wrong with your child. I need to know... I need to find out what is going on and if / how we can help it. I know that I can never fix this but we can always work on making it better.

I will NEVER stop trying to make my daughter feel better. I will NEVER stop hoping that there will come along some procedure or cure or "fix" for all her ailments. I will NEVER stop looking for answers. That is who I am... and I cannot change that. But I cannot find the answer... when I don't know the question. It is only wise of us to be well informed and currently I feel like we are again floundering .... we need a plan here people!